Posted in Family, Type 1 diabetes

Tour of Hope at Southmead Hospital

Group photo of JDRF team, Laura and Dr Gillespie
From left: Lee and Danielle of JDRF, Laura with her JDRF mascot bears Ruby and Rufus, and Dr Kathleen Gillespie

Just before the summer holidays, my daughter Laura and I were lucky enough to be invited to tour some of the research laboratories of Southmead Hospital. The purpose of the tour was to see at first hand some of the work being co-funded by the JDRF to search for a cure for Type 1 diabetes. Regular readers of this blog will know that Laura was diagnosed with Type 1 diabetes at the age of three, a few years after Gordon, my husband received his own diagnosis of the same disease.

JDRF logo and URLJDRF funds a lot of research projects all around the world, and by chance some of these happen to be based in the hospital that helps us manage Laura’s diabetes. It’s also the hospital in which she was born. So there were lots of good reasons to go along for a look behind the scenes, even though the tour happened to fall the day before we were about to depart to Greece on holiday. I’m very glad I made the slightly reckless decision to abandon our packing and go for it!

What We Saw on our Tour

Photo of Dr Gillespie syringing liquid
Dr Gillespie demonstrates DNA extraction – from a kiwi fruit!

Accompanied by our regional JDRF team, the lovely Lee Newman and Danielle Angelli, we were shown round the labs by Dr Kathleen Gillespie, a researcher in molecular medicine with special interest in the genetic mechanisms underlying immunity. Apparently 50% of the occurrences of T1D are thought to be genetic-related – although it’s by no means straightforward, as there are incidences of identical twins, one of whom develops the disease and the other doesn’t.

Photo of technician with full tray of samples
“And here are some I prepared earlier”

Dr Gillespie introduced us to her cheerful and welcoming team of staff who have dedicated their careers to amazing projects investigating the prediction and prevention of the development of Type 1 diabetes. We toured a series of small laboratories, each with a special set of expensive machinery – but the machinery would be worthless without the intelligence and imagination of the extraordinary staff who operate it. Their kit included some less costly items that you’d find in any kitchen, such as fridges and microwaves. When Dr Gillespie showed us how to extract DNA, she did so on a kiwi fruit!

“Our work does look a lot like cookery sometimes,” said Dr Gillespie. “People who are good at cooking are usually good at lab work too!”

How the Work is Funded

Every research project that goes into the jigsaw of the search for a cure has to be funded separately, in blocks, with submissions made to fundholders in order for the work to continue. The tour made us all aware of the importance of raising funds for the JDRF long-term, so that their work can continue.

We all came away motivated to work harder to raise funds and awareness for JDRF. We were also inspired by the imagination, creativity, positive attitude and dedication of Dr Gillespie, her team, and their equivalents around the world, for helping bring the cure for diabetes ever closer.

Photo of Laura looking at contents of test-tube in lab
“So that’s what DNA looks like!”

My Book Launch in aid of JDRF

Cover of my new book, "Coming To Terms with Type 1 Diabetes"
Cover design by SilverWood Books

This November, to mark World Diabetes Day, I’ll be launching the paperback edition of my book Coming To Terms With Type 1 Diabetes, to make more widely available the ebook that I published for WDD last year. A new chapter will be included entitled “Diabetes Is Always With Us”. If you’re within reach of Bristol and would like to come to the event launch at Foyles Bookshop, Cabot Circus, on Thursday 13th November, the eve of World Diabetes Day, please send me a message to reserve you a place at the event. I’ll also send you more details of the launch.

For more information about the JDRF, please visit their website: www.jdrf.org.uk.

For more information about Coming To Terms With Type 1 Diabetes, see this page on my website here: Coming To Terms With Type 1 Diabetes

Posted in Family, Personal life

The Wisdom of Estate Agents

(This post was originally written for the September edition of Hawkesbury Parish News, my local community’s newsletter)

Photo of Laura in purple frock and tiara
My daughter Laura as Carnival Queen’s attendant at this year’s Village Show

Twenty-three years ago, when I was negotiating to buy my house in Hawkesbury Upton, there were four significant facts that I’m glad I didn’t know at the time, because they’d have made the process much more stressful. But with hindsight it seems remiss of the estate agent not to have told me:

  • there is an excellent village primary school
  • the village is in the catchment area for an equally good secondary school, with admission pretty much guaranteed for anyone who lives here
  • the extraordinary annual village show – the undisputed highlight of the village year – would make me proud to call Hawkesbury Upton my home
  • climate change and the subsequent increased rainfall would make me very glad indeed to have a house on high ground
Photo of Laura in her new school uniform
Laura ready for her first day at secondary school (still inadvertently wearing the purple sparkly nail polish from the Show)

All four of these factors have given me cause for celebration this year, when my daughter left the primary school with a glowing report, gained a place at KLB, and was picked as Carnival Queen’s Attendant for the Show – and on numerous occasions throughout the year we’ve watched copious rainwater flowing away from our house, downhill, down the middle of our road.

But as September begins, I’m mindful of two more facts omitted from the estate agent’s blurb that I was left to learn from my new neighbours:

  • the day of the village show is the last day of summer
  • when it’s jacket weather in Chipping Sodbury, it’s overcoat weather in Hawkesbury Upton

Perhaps that estate agent was smarter than I gave him credit for. Now where did I leave my overcoat?

 

Posted in Family, Personal life

It’s Show Time! (Hawkesbury Horticultural Show, that is…)

This post was written for this month’s edition of the Hawkesbury Parish News, in anticipation of the Village Show at the end of this month. Looking back at the photos of our float last year, I am wishing hard that we’ll have such blue skies for this year’s show!

Photo of Pandamonium float with children dressed as pandas
Our float for last year’s Show (I was the Chinese Ambassador, Gordon was the Scottish zookeeper)

Close up of panda reading "Panda Baby Names" bookI hadn’t lived in Hawkesbury Upton very long before I realised the importance of the annual Horticultural Show in the village calendar. Since I moved here in 1991, I haven’t missed a single Show, and I always arrange my summer holidays to make sure I’m back in time to prepare for it.

I’ve put plenty of entries into the Show over the years and won a handful of prizes in categories as diverse as crochet, hen’s eggs, jam, wine and – my favourite prize of all – the oddly-shaped vegetable (sadly no longer in the schedule).

I’ve been on many floats, from Youth Club’s Global Warming in the 1990s (Arctic scene at one end, tropical island at the other) and St Trinian’s, to more recently The Lion, The Witch and The Wardrobe with After-School Club, and Edinburgh Zoo’s Giant Pandas with my daughter and her friends last year.

Close up of children in Pandamonium float

It’s always exciting to win a prize, even third in a category in which there are only two other entries, but you don’t need to win prizes to enjoy the Village Show. The most satisfaction comes simply from feeling like you’re part of a huge, traditional act of community.

It’s also rewarding to serve on the Committee, which I did for 13 years. I’ll never forget seeing at one meeting an elderly judge demonstrate his set of brass shallot-measuring rings, as used by his father before him. The Hawkesbury Show is living history.

But the most unexpected buzz relating to the show struck me only recently, when, at my daughter’s 11th birthday party, I was chatting to her friends’ mums in our garden. One of them, relatively new to the village, was taking photos of the children’s antics.

“You ought to enter that into the Village Show,” I remarked, admiring a particularly good one.

“Spoken like a true Hawkesbury villager!” said another mum, whose family has been in Hawkesbury for generations.

23 years after moving here, I’ve finally arrived.

Happy Show Day, everyone!

The 2014 Show will take place on Saturday 30th August. For more information, visit its website: www.hawkesburyshow.org.

Pandomonium float seen from other side showing sign saying "all the way from Edinburgh"

 

Posted in Family, Travel, Writing

Inspired by Young Writers

A post celebrating the joy of young writers wrapped up in their stories

image
Inspiration for a three year old girl's fan fiction

One of the many highlights of the Homeric Writers’ Retreat, which I had the pleasure of attending earlier this month on the Greek island of Ithaca, was witnessing a young boy, aged about five, shyly but proudly approaching our group as we sat chatting by the hotel pool, to share with us the story that he’d written.

He’d dictated it to his mum, she’d written it down, and he’d subsequently provided the illustrations. He regaled us with his fan-fiction story about Angry Birds. His tale seemed as real to him as we were. Even Homer would have been impressed by his passion for his story. (Perhaps we should have asked for his autograph; in a couple of decades, we might be boasting that we’d “discovered” him.)

My Daughter’s Early Stories

On returning home, clearing out a dusty box of papers from beneath my desk, by chance I came across a trio of stories dictated by my daughter Laura before she started school. Reading them now at the ripe old age of 11, she finds them terribly funny, but I’m touched by how completely that young storyteller, like the boy in Ithaca, was immersed in her own world of make-believe. I’m reproducing them below for your entertainment.

Long may children continue to write with such obvious passion and pleasure, their imaginations and values undimmed by the abundance of distractions in our modern age.

The Family Choice
by Laura Young aged 4

There was a family and they lived happily together and that morning the postman came and the birds were singing and they went to the playpark before they had their breakfast and they loved to go on the slide and it was very lovely and they played and played and played. They really liked it at the playpark so they went on the swings and on the slide and on the roundabout and they were singing “halalalloo” and they were doing a show in the afternoon to their friends and they loved to go on the swings because they kept standing up on the swings and they didn’t fall down. They were always going on the slide and on the roundabout because they were so lovely and the postman came every day.

The Lovely Pony and the Horsey and the Unicorn
by Laura Young aged 4

There was a horsey.
There was a pony.
There was a unicorn.
The old lady looked after them.
The superlady was coming and the superman in case there was any trouble and there wasn’t any trouble.
The Tumbletots lady and the Tumbletots little girl came and played with them and tried to help at school with them.
Then the man which didn’t like the pony and the horsey and the unicorn came then the superlady and the superman came and got things off him then the naughty man liked them.
The End.

Milly Molly Mandy Goes Yukky
by Laura Young aged 3

Once upon a time a big frog came and ate Milly Molly Mandy all up and Billy Blunt and Little Friend Susan. They couldn’t go anywhere and had to stay in the frog’s tummy. Another frog came and ate other people all up. Another frog came and ate the boys and girls up. A cat came (Milly Molly Mandy’s cat) and ate all the frogs up and Milly Molly Mandy and Billy Blunt and Little Friend Susan. Some other people rescued them and they went home for tea.

(More feedback from the fabulous Homeric Writers’ Retreat to follow soon.)

Posted in Family, Personal life

Flummoxed by a Flute Exam

Wills Memorial Building
Wills Memorial Building – photo by Rob Brewer via Wikipedia (click photo for link)

A post about a curious incident after my daughter’s flute exam

Having long ago given in to the classic parenting trap of bribing one’s child through traumatic events, I agreed that after my eleven-year-old daughter Laura had taken her flute exam, I’d treat her to a trip to the nearest shopping mall, Cabot Circus.

Her flute exam fell at a bad time: the day of the annual school concert at the village school during her final few days there before moving up to secondary school. The exam was to be held at Bristol Music School in Clifton, in the centre of Bristol, 20 miles away from our village. Attending the exam meant she had to miss not only afternoon school but also the first of the two concert performances.

Musical Mission

I duly collected Laura and her flute from school, and we drove into town. As we neared the Music School, we passed dozens of smiling new university graduates with proud parents, attending their degree ceremony in the Wills Memorial Building. As I watched them milling about, I did a simultaneous flash back to my own degree day, in my pink dress and grey gown with my parents up in York years ago, and a flash forward to Laura’s in 10 years time. Where did her first 11 years go? I wondered, panicking about finding a parking space with so many extra visitors in town.

Despite the heat, Laura was playing it cool: it takes a lot to faze her. She’d been practising hard on her flute for the previous few days, and if she was nervous, she was hiding it better than her mother was. We arrived in plenty of time, the exam was over quickly, and Laura remained calm throughout, focused instead on the promised Krispy Kreme doughnut that awaited her at Cabot Circus.

Cabot Circus logoParking at Cabot Circus was easier than in Clifton: we simply drove up the spiral ramp to the fourth floor of the multi-storey car park and straight ahead into an empty space. With one eye on the clock, as we had to be back at school for the 5pm concert, we did a quick tour of the toy shop to spend her birthday money, wrapped ourselves around a couple of doughnuts, and returned to the car.

The Missing Car

Or so was our plan. When we arrived back at the top of the ramp on the fourth floor, my car was not there. In its place was an almost-identical one – charcoal grey instead of smoke grey, a couple of years newer, and, I admit it, with fewer dents. But it was in exactly the same place. Laura, whose memory is much better than mine, assured me we had indeed parked on the fourth floor, but we agreed to check the exact same spot on the third and the fifth floors just in case.

My car was not there either. Realising that not only were we now on a tight timescale to get back to school for the concert, but that also locked in the car book were Laura’s flute, music and Heather the rabbit, her favourite and irreplaceable cuddly toy, I began to panic and theorise about this disaster. Perhaps the owner of the darker car had a key which matched ours, had parked next to us and got into the wrong car to depart by mistake?

The Search is On

Photo of my car on a road
Has anybody seen this car?

Thinking as fast as my now pounding heart, I grabbed Laura by the hand and whisked her down to the attendants’ office on the ground floor to explain our plight. The couple of chaps in there were kind and patient. They took down the details of the car and where I’d left it, before running a very clever search by licence plate on their security camera, which played back a recording of us driving in earlier. They then despatched their junior staff member to find it. Moments later, he buzzed through to say he had indeed found our car, and we were instructed to meet him at the lift on the fourth floor.

So we were right, it was the fourth floor! But we were puzzled as to how he could have found it so quickly. Had the driver of the darker car realised his mistake just the minute before and returned ours to swap it back again?

Mystery Solved

All was revealed when we arrived back on the fourth floor. The waiting attendant patiently pointed us in the direction of our car, which was awaiting at the top of the ramp. But, it emerged, there were TWO spiral ramps  on this side of the building: one going up and one going down. We’d looked at the top of the down ramp instead of the up. Well, who knew?

“We’ve never lost a car yet since we opened,” the attendant assured me, smiling proudly as he waved us off.

Photo of toy rabbit on roller skates
“Phew, I thought I was going to have skate all the way home.”

Relieved to retrieve car, flute and rabbit and to be on our way back to school in time for Laura’s concert performance, I wondered how I’d managed to be so stupid, when we were so geared up for action earlier on. Then it occurred to me: the minute the flute exam was over, our adrenalin surge had stopped, our brains had cranked down a few notches, and we’d relaxed and stopped thinking strategically. We were no longer primed for fight or flight, and in fact were not fit for either. No wonder we couldn’t find the car.

It was only later that I discovered that between leaving the exam centre and getting home that I’d also managed to lose my glasses.

But the good news is: we’ve just heard Laura passed her flute exam. Thank goodness for that! Parental duty done.