Posted in Type 1 diabetes

Not All Dreams Are Impossible (For Diabetes Awareness Week)

Laura, on her 9th birthday, who has had diabetes since 10 day before her 4th birthdayre herSometimes, when you have what seems like an impossible dream, you just have to do what you can to try to make it come true – and then hope for the best.  My dream  is that a cure will be found for  Type 1 diabetes. But it’s not really impossible. Clearly I’m not able to make this happen myself: I’m no Marie Curie. But there are incredibly talented, inspired and dedicated scientists in this world who, with enough money to fund their research, will  find a cure one day. Of this I’m sure. And in the meantime, maybe I can help bring that day closer by raising awareness (and funds)  through occasional blog posts here. You don’t have to read them. But I defy you to look my lovely daughter Laura in the eye here and say you don’t care. Because this is her story. 

This picture was taken on Laura’s ninth birthday, at her party. That’s five years and ten days after she was diagnosed with Type 1 Diabetes.

Type 1 Diabetes is a devastating disease. If you are unfortunate enough to get it, it is likely to strike you in childhood – and if you get it, you’ve got it for life.There’s no known cause or cure. It’s a life sentence.

Diagnosed at the age of 3, Laura cannot remember life without illness.

No, she will not grow out of it. (Exhibit A: my husband – he still has his Type 1 diabetes at the age of 58.)

Immediately on diagnosis, the daily routine must begin of frequent blood testing, which means pricking your fingers to draw fresh blood lots of times every day. You must give yourself an injection of insulin several times a day, or wear an electronic pump 24/7 that will deliver the insulin into your flesh via a cannula. Refusal is not an option: without this treatment, the patient will quickly die. Many do, all over the world, in countries too poor to provide healthcare.

My daughter is lucky – we get the treatment she needs.

She’s lucky – she has the sterile needles required to safely prick her fingers six times a day for her blood tests. (But just because they’re sterile, it doesn’t mean it doesn’t hurt.)

She’s lucky – from day one, she had the NHS to supply the clean needles and insulin needed to provide her four injections every day, and she had loving parents who were prepared to give the injections until she’s old enough to do it herself.

She’s lucky – she’s now got an infusion pump with a tube sunk into her flesh 24/7, to deliver her life-saving insulin subcutaneously. The insertion needle for this tube is long and thick and it hurts when we have to change it twice a week.

Laura and friend at JDRF Youth Ambassador Event

We’re lucky – she’s brave and uncomplaining by nature, but even so we have to bite our tongues when someone complains about having a one-off inocculation or flu jab. She’s a seasoned veteran of the hypodermic needle. Her fingertips are pitted with black dots from her multiple daily bloods tests. And yes, no matter how often you stick needles into yourself, they still hurt. I will forever mourn the loss of my daughter’s perfect health.

But I’m not after pity for my family’s plight. What I really want is a cure – not just for my darling daughter or  husband, but for the generations of children yet to come, all over the world, who will continue to suffer from this wretched disease, until we find a cure. Please help me to help them.

For every penny that you donate to the JDRF, that cure comes a little closer.

(By the way, Laura sends hugs.)

Author:

Optimistic author, blogger, journalist, book reviewer and public speaker whose life revolves around books. Her first love is writing fiction, including the new Sophie Sayers Village Mystery novels (out 2017), short stories and essays inspired by her life in an English village. She also writes how-to books for authors and books about living with Type 1 diabetes. She is Author Advice Centre Editor and and UK Ambassador for the Alliance of Independent Authors (ALLi) Advice Centre blog, an ambassador for the children's reading charity Readathon, and an official speaker for the diabetes research charity JDRF.

3 thoughts on “Not All Dreams Are Impossible (For Diabetes Awareness Week)

  1. A friend’s son was just diagnosed two years ago. I believe that if we keep the brilliant research doctors and scientists on it, a cure will be found.

    1. Brilliant is the word, Laura – every time I go to a JDRF presentation about the work being done, I am astounded at their progress. Having my hope kept alive by the JDRF makes it so much easier to cope with the condition. Best wishes to your friend’s son – it takes a long time to get used to dealing with diabetes and even five years on from my daughter’s diagnosis, we are still learning all the time. A cure is out there, I am sure.

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